Hattie’s determination shines

A huge congratulations to Hattie who, despite the expectations of doctors and physiotherapists,  is on the road to being able to walk again.

Hattie has Rett Syndrome, a rare neurological condition which effects brain development and leads to physical and developmental disabilities.

Last year, Hattie faced a massive setback when her left knee began dislocating multiple times a day, causing her intense pain. She had to rely on a hoist to get around. Hattie is very sociable, but as her mobility declined, she spent most of her time in bed or in a chair and doctors and physiotherapists told us she would never walk again.

Natasha manages our Hampshire care home where Hattie lives. She told us: “It was heartbreaking watching Hattie lose her independence, that’s what we’re determined to rebuild.”

In May, Hattie underwent an operation to stabilise her knee. During surgery, doctors found her bones were soft, and they said it was unlikely she’d ever stand again and she would have to rely on a hoist permanently. 

But Hattie and her team refused to give up.  Her support team challenged the doctors assumptions and fought for Hattie. They invited doctors and physiotherapists to see Hattie at home, insisting she be given the chance to try to stand and walk again. Initially, professionals suggested only minor movements – just placing her feet on a bench to start bending her ankles. But the team pressed further and their persistence paid off. 

Natasha said: “Hattie gets a little nervous when standing as her confidence is still rebuilding but she’s not in pain anymore. What began as a few seconds of standing has grown to over two minutes at a time and we have now been given the green light that we’ll be able to start working towards her taking her first steps if we continue with what we’re already doing.

“One of the original physiotherapists, who had doubted Hattie’s ability to ever stand again, was amazed. They were so surprised and told us it speaks volumes about the level of care that Hattie is receiving, as they didn’t think this would be possible for her.

“I’ve known Hattie for years and I’m beyond proud of her determination, and of my team for their amazing hard work and person-centred care. It’s been an emotional journey and we still have a long way to go but we are filled with hope.”